We are excited to announce our newest partnership with the Jon Shaw Foundation to help bring epilepsy monitoring devices to those in need of the equipment who may not be able to afford it.
Who are the Jon Shaw Foundation?
Established as a registered charity in April 2020, the Jon Shaw Foundation was born out of a group of friends and family of the late Jon Shaw, a 19-year-old man who sadly passed away in 2019 due to Sudden Unexpected Death in Epilepsy, known as SUDEP for short.
Jon’s mother and founder of the charity Wendy Shaw established the charity in Jon’s memory and with three main aims in mind:
- To support young people aged 0-25 living with epilepsy
- To provide funding for equipment that is otherwise unavailable via universal services
- To help improve the mental health of bereaved siblings, loved ones, and close friends
What do they do?
The foundation provides financial assistance for families and people living with epilepsy who need seizure detection equipment and epilepsy monitoring services that are not available to them on the NHS.
The Jon Shaw Foundation works hard to change the narrative for bereaved siblings, loved ones, and friends of people who have lost their lives to the condition by funding activities and counselling working closely with various organisations to make this happen.
In addition, the JSF is continuously hosting fundraising events to raise awareness of epilepsy and SUDEP. To date, the foundation has reached more than 30,000 people and raised over £25,0001.
What can the partnership do for you?
The Jon Shaw Foundation can offer support in the form of funding your purchase of an epilepsy alarm. If you find a product on our website that is out of your reach financially, get in touch with the JSF to find out whether they can help you.